I am typing this from home as I flew back to LA this evening to be with my 3 year old and my 2 week old. In the meantime, my mom (Ann) told me the following : earlier tonight Ali had a critical episode in which her ICP shot up into the 50’s – extremely high and dangerous. Doctors quickly called everyone into the ICU. They were apparently preparing family and friends to say goodbye. Everything that could be done was being done and there was no emergency intervention possible. But mercifully, after some hardcore bedside meditation by Jerry (dad), her ICP (inter-cranial pressure) dropped back down to the low 30’s. We still would like to see it under 30 but this is much more tolerable. Furthermore, the oxygen profusion in her brain – another crucial element for recovery and repair – went up to 24. That’s the highest it’s been and, crucially, above 20 which is the benchmark. Most hopefully however is that she started to breathe a little bit on her own, assisting the respirator approximately every four breaths.
We are not even close to out of the woods of course. But Ali continues to demonstrate real toughness and determination. I personally have been in the throes of terrible grief assuming it’s all over only to be inspired to hope once again. It’s a terrible emotional roller coaster but I’ll take it if it means we keep getting another day.
Thank you all again for your thoughts and prayers (and especially to all the people who have worked diligently to find leads for Dr. Manely). It means the world to us.